The Day Off

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The other day Julia started to complain she had something in her eye. Then one of the boys noticed her right pupil was massive. The boys quickly ruled out drugs as a cause then consulted Doctor Google who said it was either a brain haemorrhage or tumour.  So Ben drove her to A&E and the other lads were put in charge of my care. We soon discovered that Jonny would make an excellent nurse.

Here she is on the phone to 111.

Within 30 minutes she’d a head scan but they didn’t find anything. I don’t know if that means she hasn’t a got brain or nothing abnormal was detected. Ju went back the next day and they still couldn’t explain it. I suspect she rubbed some medication in her eye to get night off.

The good news is that our friends prayed and now it’s all good.

Our lovely friend, Pat, from Church has been providing respite for the past few weeks which has been brilliant for Ju. Sue Ryder Hospice at Home carers and nurses finished their training for me today and will start daily respite visits from next week to give Julia some time off so she doesn’t have resort to A&E. It was entertaining for her to sit in on the sessions and see the training pack she’d written in use.

Dexter has started paying attention to my gadgets and tries to fiddle with the settings for my feed pump although thankfully they’re locked. He mimics the noise of the suction in a remarkably realistic way and likes to try on my BiPAP mask. I’m still able to help with him at mealtimes if everyone else has given up in frustration having been splattered with macaroni cheese or ice cream. He finally said my name this week although he still refers to Ju as BumBum.

Happy New Year

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About a year ago … they said I wouldn’t make it to Christmas so it has been livelier than I expected. I think it’s a God thing.

I want to thank those who kept us in their thoughts or prayers.

A good friend, Mary, popped over to drop some DVDs off and she said I look healthy for someone who’s supposed to be dying! I took that as a compliment.

I’m getting used to the breathing machine (BiPAP). I can now sleep for 3 hours with it on.

On Christmas day the family came round to our place bringing an entire Christmas dinner from as far afield as Grove and Bicester. There were 22 of them and we had a brilliant time. The oldest was Julia’s Dad at 82 and the youngest our newest nephew, Zachary, at 5 weeks and they both slept through most of it. I escaped and slept through the meal but joined everyone to open gifts which included another inflatable Jesus.

We’ve told the boys any moaning coming from the bedroom is probably me getting out of bed as it’s beginning to get really difficult. Julia says it’s my heavy head.

The collar is getting interesting as my neck gets weaker; I’ve broken two of the supports. (Must be my heavy head!)

If you’re into praying: I feel quite healthy at the moment – just tired. Breathing is getting tricky. O2 sats are normal but it’s taking more effort to breathe.

We wish you all a happy and blessed new year.