Having had enough of Michael’s interminable faffing I went to sit in the living room and read a book at 02.30. I awoke to the sound of our phone ringing at 4 am. The number was “Mike Mobile” so I naturally assumed it was my brother but on checking the number found it was Michael’s phone. As I opened the door to our bedroom I could hear the alarm for his BiPAP then spotted him flat on the floor. After my initial reaction (panic) I checked he was still breathing before manhandling him upright and replacing the BiPAP. It’s amazing what you can do when you have to.
Being at home and facing a situation like this is far more difficult than at work; there’s no alarm button and no colleagues to help you move the risk-taking buffoon back into bed. Panic gave way to irrational anger; why did he try and get out of bed on his own again? I feel pretty chilled about it now, but for a few days afterwards I couldn’t stop thinking about what might have happened if he hadn’t been able to reach his phone.
We’ve made an adjustment to the place his call bell is so now he can reach it is he falls again but Michael shows no signs of actually doing what I tell him to and continues to launch himself out of bed while I sleep through it. I shouldn’t complain about his stubbornness though; it’s what got him this far.
No toddlers were harmed in the making of this blog. Reenactment staged using a very cooperative model.
As with all things in life, it could have been worse, and I am very glad you’re both smart people in a crisis, and good-humoured afterwards. 🙂
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Well, Mike you don’t do things by half do you!. It’s enough to give Julia grey hair! ( Julia hair dye is on offer at the moment if you want to stock up or need me to get any for you ?)
I am so glad you are so stubborn Mike, but please no more giving Julia panic times like that.
Am so glad him up there was not kipping but had an eye on you.
Love to two amazing ❣️ peeps regards Karen.
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You two are so strong together and have the ability to tell it how it is without any trace of self pity. Not entirely sure that this is the right time of day to choose to dance around the bedroom! Respect and 💕
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Thank God (I expect you have already) that you are both alright, especially you Michael! I fall over at regular intervals (I like to keep the Paramedics on their toes), but since wearing a proximity alarm around my neck which automatically summons the emergency services should I fall, I only have to factor in that it will take about 25 minutes for the 1st responder to appear and help assess why I am on the floor helpless as an upturned beetle. Speechless too. The joys of MND. Stephen x
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Oh My God! (This is worth more than mere ‘OMG’… and I mean it as a genuine prayer of thanks for you two.)
You’ve both been on my mind. Now I know why… x
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This is a timely reminder that when we wake up in the middle of the night. we can usefully focus our prayers on holding you Mike before The Lord for your 24/7 support.
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Yikes, Mike. MND is a beast. You and Stephen are examples of pilgrims. (Neither) “Hobgoblin nor foul fiend Can daunt his spirit. He knows he at the end Shall life inherit.”
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What an amazing couple you are – nothing every seems to faze you ! we are always at the end of a phone call if needed. Keeper you in our prayers . Moira and ken
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Mike and Julia, I just love reading your posts. Actually more than that I feel like I love you guys so much. You are such an inspiration. I pray that Christ might continue to carry your family through this MND rollercoaster. If ever we can do anything for you please say. Much love in Christ!
Anthony
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Someone was definitely looking after you there with the breathing tube. Scary story, but a wonderful insight into how challenging some things are that most take for granted. Keep the blogs coming. Love hearing both sides of the story.
Glad it all worked out x
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