Busy Week

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Last week we had to call another ambulance.

I had an episode of reflux where some feed ended up in my lungs and up my nose. It was scary; I felt like I couldn’t breathe but my Oxygen sats. were the best they’ve been over the last few months. My nose was running and the saliva problem got worse as my body reacted to the feed. My cough wasn’t strong enough to clear it so we used my cough assist and suction machine. Unfortunately my gag reflex is super sensitive (another joy of the MND) – so Julia was looking in my mouth to see the stuff that needed suction and quickly stepped aside as I wretched. It was hilarious!

    

After 20 minutes I was worn out so we agreed to call an ambulance.

4 minutes later two paramedics turned up in a car (first responders) and a while later two more arrived in an ambulance. Fortunately, in the meantime we had got the chest cleared.  Julia said it was “the green uniform effect” and suggested I get a cardboard cut-out of a paramedic.

I didn’t have to go to A&E up at the John Radcliffe in Oxford; they managed to get me an appointment in our local hospital for a chest X-ray to show it had all cleared. The doctor gave me a 3 day course of antibiotics just to be safe.

They are so nice down at EMU (Emergency Multidisciplinary Unit) at Abingdon Hospital – Julia even got a cup NHS tea.

A couple of days later the same thing happened but we managed to clear it without the green uniform effect.

Julia emailed the surgery and the GP got back within the hour, even though it was his day off! He added Dom Pérignon (Domperidone), the true champagne breakfast – to speed up the transit of food through my stomach.  Now I am on smaller feeds 6 times a day starting at 7.30am  Doesn’t she know I am a teenager !?!

Kevin becomes a teenager

So now we are taking the suction machine and the cough assist wherever we go. I don’t know where I would be without Julia; probably in hospital. I love her more than ever…

Head and Shoulders

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So my shoulders have lost their strength and when I have a shower I cannot dry my back. Julia ends up drying me. She is good to me. I feel like royalty; I’m sure the Queen has someone who dries her back.

I haven’t yet asked Julia to wear her nurse’s uniform while she cares for me but it’s just a matter of time…

 

Andrea, Julia’s sister, is also a carer and she’s offered to give me a bed bath – I hope she’s joking – so I’ve got a phrase at the top of the text to speech app ready: “Help! Get this woman off me!”

Also in bed I have trouble moving about to get comfy especially when I slide down the bed in the night. Julia says it like having a seal in bed.

My neck is getting weaker so I’ve had to wear a collar when I’m not sitting in my chair or bed.

Julia bought an Avid Merrion collar..

But I like my Head up collar:

I found it rubbed under my chin and the ventilation physios gave me a gel pad to help.

Sad news: the chocolate puddings are gone as swallowing them was getting too tricky.  I’m on soups or yogurts without any bits (a bit like Dexter).  And I have trouble with soup spoons, even in my stronger right hand, so I have to use a cup for the soup.

Luckily I can still have McDonald’s chocolate milk shake, though it takes much longer to drink nowadays.  And do you know they contain 433 kcals! (all part of maintaining my weight).

I’ve become a full teenager; Julia wakes me up for my breakfast feed at 9am then I’m back to sleep for a few hours till my 12 noon feed. I’m sleeping for 14 hours minimum a night! I’ve also got into duvet days where I spend most of the day in bed getting up for tea.  I’ve tried to cut down on the Netflix and Amazon Prime bingeing.

I’ve had a blood test but the GP says it doesn’t show anything horribly wrong to explain the tiredness – so it must be part of the disease.

If you are into prayer; Please pray I’ll get used to my BiPAP breathing machine for overnight  – it is proving hard to get used to as it seems to be fighting with my breathing. At my last ventilation appointment the numbers had gone down so I probably need to start using it.

The voice

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The hardest thing so far has been losing my speech. Looking back I seemed to have gone through the grieving process, spending quite a lot of time in denial, but now I’ve got my head round it and it seems simpler. Julia says I’m stubborn – I take that as a compliment. I can now speak fluent Teletubby which impresses my grandson Dexter.  But sadly Dexter won’t be learning English from me just now.

What can you do when your speech starts to go:


Alphabet charts
Point to the first letter of every word; this gives some clue and breaks up the words to make it easier. And we have been advised to get different phrases written out for the bathroom and bedroom so I can just point to a phrase when I need something quickly.
Alphabet charts in action:

Voice Banking and tablet or phone:

Model Talker
,  the company I did my voice banking with, have created three different voices over the last few weeks to solve problems with clarity and pronunciation. How does it sound?

Only joking!  Here’s my voice:

The Apps give you some phrases and you can add  or edit any hard to predict phrases you need. Sounds complicated but it becomes simpler as you get used to it.  The Speech and Language Therapist has loaned me a Microsoft based tablet with the grid pad app.

I also managed to get my voice on my Android phone; using a free app like “Speech Assistant” is easy, but a time may come when I can’t hit the right key on a very small phone keyboard and I have to use the tablet a bit more.

It is much slower typing things out but you have two options:

  1. Option one; type it roughly and get the other person to read it. Brilliant for noisy environments like the pub and you don’t have get each word 100% correct. A few typos aren’t the end of the world and you’ll find people finishing off your sentence, so less typing.
  2. The other option is making use of the synthesised voice, either pre-programmed phrases or typing. This option is not very forgiving of typos; you have to get it 100% right or gobbledegook comes out.

What I have learnt:

  1. Although I know what I’m saying the listener probably hasn’t a clue. Luckily Julia gives me clear feedback on that one!
  2. Hand movements – like Charades – works on the simple repetitive things but not on more complex. i.e. we have an understanding that doing a ‘C’ shape with my hand stands for “coffee”.
  3. Maybe I should have listened to Mr Tumble and learned sign language whilst watching Cbeebies with Dexter?
  4. We have used Facebook messenger quite a lot but Julia finds it frustrating when Jonny suddenly answers a question that I sent him on messenger out loud.
  5. Julia misses my voice – I never imagined that would be a side effect but now it seems obvious. I’m so grateful to Abi from church who mentioned it in the first few days of my diagnosis. I did voice banking a year ago when my voice was up to it. Julia now associates my electronic voice with me. If you have MND and your voice is pretty good get voice banking done ASAP, you won’t regret it.
  6. It gets you thinking what you are going to say/ask ahead of time. E.g. when I went down the pub with my good friend Dave I pre-programmed a set of questions and some phrases so it saved some time typing.

How am I doing?
I’m quite tired. Julia says I’ve regressed to full teenager; I sleep most mornings and I feel I’m not getting things done. I used to miss breakfast so now she wakes me up at 9am for a feed and medicines.

One theory is that I’m struggling to breathe at night and that’s what’s making me tired. So they have given me a BiPAP – Non Invasive Ventilation.  It is a bit weird but I’m getting used to it slowly.

I’ve started to struggle with the blended food so now I do soups for lunch. Good news is that the chocolate puddings are still going down really well! And Audrey (my PEG tube) is getting more use – up to 4 times a day.

We love the MNDA

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I hadn’t fully realised that the majority of the key NHS people I’ve been seeing are funded by the MND Association! In fact the MND clinic that I attend every three months doesn’t cost the NHS a penny. So the MNDA not only fund research, fund equipment but they also fund positions in the NHS with wonderful people and that makes life as comfortable as possible for people like me and our families. We love the MNDA!
So we must raise loads of money for them! Even a fiver would help. Thanks.

Our story was featured in the latest MNDA campaign. (click here to see latest campaign)

Here is a team photo of the wonderful people that have been looking after me:

I can’t imagine living in a country where you don’t get free healthcare at point of use and I can imagine that this would cost a lot of money if I had to pay. The whole team is wonderful and so positive.

So how many people does it take to look after one person with MND?

Oxford unit:
Consultant Profs Talbot and Turner
Initial Diagnosis and I see one of them every 3 months at the MND clinic at the West Wing of the JR Hospital Oxford.

MND Nurse – Rachael
I see at every clinic appointment, but I know I can contact her at any time with queries. Always very positive!

 

MND clinic visitors – are there coordinating the MND clinic and make the whole experience friendly. They know where you are meant to be and generally look after you in the clinic: Lesley, Dave and Penny – all MNDA volunteers!:

Ventilation unit physioAnna – keeping me breathing, my airways open and my chest free of infection. She supplied the Scream Extractor. Recently she said my lung function measures had improved!  That’s not supposed to happen.

SALT: Charlotte – Speech and Language Therapist – making sure I don’t take too many risks while eating and showing me techniques to get the most out of my lousy swallow.

SALT : Tracy and Gemma – I banked my voice with Tracy last year in August – and now I’m using a tablet called a Grid Pad to aid my speech which sounds a bit like me.

Clinic Dietitian Laura and the community Dietitian team. I had a PEG feeding tube fitted in November last year and now I’m using it to get the nutrition. I eat a small amount “for pleasure” – mainly chicken tikka masala and various chocolate puddings.

Occupational Theapist: Jenny: 
I’ve just started seeing Jenny as my neck is starting to get weak and painful towards the end of the day. I have just received a Sheffield Snood – or Head up Collar.

GPs
Manage my day to day needs including various courses of antibiotics in January and adjusting puffers. They recently gave me a pink puffer  – which actually tastes pink.

Oh and last but not least..

 

My own private nurse / wife, Julia in between nagging me to stop choking she makes sure I get the best care and reads up on what we should be doing to make my quality of life as good as possible. I never imagined marrying a nurse all those years ago would be so useful!

Many thanks for your generous donations!

Prayer team

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Why would a seemingly intelligent scientific person like myself believe in prayer?  At ‘A’ levels (many years ago) I did the “sciency” ones; Physics, Chemistry, Maths and Further Maths. And I did well enough to get into the best course for Electronic Engineering at Southampton Uni. So science and engineering is a passion.

In my first term at Uni I had a thought; “Does God exist?” If He does then I’d better find out what I need to do to get to Heaven; If He doesn’t exist then there are no consequences and I can do whatever I like with my life.  It just so happened that a guy I met in my year out, Nick, was on the same course, and in the same accommodation. So I quizzed him about God over lunch for a few weeks. He was very patient with me. Then one night I was feeling miserable but I remembered what I’d been told about God, and said out loud “If you are really there – you wouldn’t want me to feel this way”. Suddenly I felt a presence in the room. I opened my eyes but could not see anything; it was so loving and lifted my mood. The next night, I was feeling down again and I thought to myself this is never going to work two nights running. So I said the same thing and felt the presence of God again. Something clicked into place and that was the start of my journey with God.

Prayer Team
I still cannot believe a group of about 12 people would meet with us once a fortnight to pray for Julia and me. At first I found it really difficult, people giving up their time to pray for me regularly.  I’ve never had a prayer meeting for me and it seemed a bit weird.  But over the weeks I’ve got into it and now I wouldn’t miss it. We walk out of those meetings so encouraged, no matter what’s going on with my health.

Most of the team

What happens at these prayer meetings?
It’s not something I’ve experienced before.  Sure, I’ve prayed for people as a one off but never regularly and over several months. The group has developed and grown over the last few months. Now we start with a bit of worship, Mike brings his guitar. Then we give an update on how things are going – Julia is doing most of the talking nowadays. Next we look through a relevant Bible passage which someone (usually Alex) has chosen a week before and posted on WhatsApp. And finally the prayer starts.

And did I mention there’s a WhatsApp group of 23 people where we share news and prayer requests.

All that has been going for 10 months!

There are also loads of people I bump into or on Facebook that are praying.

Tonight the team are fasting and praying for 24 hours! Apparently there are a number of references in the Bible to fasting and praying when tricky things come up. “Sadly” – I can’t join them or I would risk the wrath of the Dietitian, but I can fast other things; TV, News and Facebook. Fasting is supposed to clear the distractions so you can hear God more clearly.

We feel so encouraged, supported and loved. I don’t think we would be so positive without all that prayer.

The Bed

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The bed has arrived!  We have moved to the downstairs bedroom and our shower room is complete.

A few of the neighbours have had a go on the bed. The massage feature got different reactions; the girls loved it but the boys said it felt weird. I like it – it is so relaxing.

We tried to snap Martin in half when he tried it…
But it only goes so far (perhaps the bed manufacturer had thought of that).

I’ve only just got used to the remote control – so many buttons. Though Dexter, our grandson, loves pushing the buttons.

I find it more comfortable than the foam wedge I was using because you can bring your knees up This stops you slipping down in the night and waking up in a heap at the bottom of the bed.

How am I doing?
Recently I’ve had trouble breathing lying down at night, so I’ve had to play with the bed and find optimal settings so I can sleep and breathe and I don’t feeling I’m sleeping in economy on a plane. So the new bed has been useful.

Sunday night I woke up coughing on my own saliva (as opposed to someone else’s? – Ew?!). It woke me up several times in the night. I was more tired than normal the next day. Julia recommended I try the Hyoscine patches that I got prescribed a while ago (in the days before the Scream Extractor) – It is a drug to help with travel sickness – but has the side effect of drying up your mouth.

Since going on the patches I haven’t choked in the night, A real result.  Those medical people are clever.

Wednesday I went to a scheduled ventilation appointment at the Churchill hospital. We expected them to say my breathing had deteriorated further and then give me another gadget to help me breathe at night, Non-invasive ventilation (NIV),  the device matches your breathing pattern and helps push more air in as you take a breath. A big step for both of us. Each time we get a new gadget it reminds Julia of the MND patients she has had in the past.

The physio did all the usual tests; taking arterial blood from my ear lobe, and measuring my lung function and cough and to all our surprise they all had improved from last time (4 months ago)!
Weird. Maybe all that prayer is getting answered slowly.

If you’re into prayer:  Thanks for all the prayers. Thank God for the amazing ventilation result this week and pray that the tiredness goes soon. Julia says I have regressed to a teenager; difficult to get me out of bed in the morning and grunting.

Also my speech is pretty bad I’ve got a gadget to help with that. More in the next blog posting…

The Reunion

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A few weekends ago we had a reunion of our church youth group from the 80’s.

I had offered to do a talk about MND but when it came to it my speech was not up to the task and so Julia stepped in and said she would do it. 3 days before she got bronchitis and lost her voice. So she put together a set of slides of embarrassing photos of me and her and prepared a narrators script.

Luckily our good friend Pauline said she would read it out; she’s into am dram so she did a cracking job of it and she didn’t need a rehearsal; she only saw the script 30 minutes before she presented it!

The talks were titled “Where was God when.. ?”

  • Martin talked about losing his son from a car accident – It was very open and honest. Really hard thing to go through.
  • And we did our story including the recent bit about the MND diagnosis. (I had a go at talking in the last few minutes of the clip – you can hear how my voice is now sounding.)

The whole weekend was brilliant – It was great seeing people I hadn’t seen for 30 something years, and luckily we all had to wear name badges to save embarrassment. Some people remembered everything and a few like me remembered a lot less from all that time ago.

It was like going back in time. They are a friendly bunch and all seemed to have gone through hard times of sorts in the last 30 years and come out the other side.

Shirley, Helen and Rachel organised the event – and put a lot of work and thought into the weekend – it started Friday evening and went through to Sunday lunchtime.

At one point we played Brucie’s Generation Game

– and they got us doing all sorts.. 

They even had the old conveyor belt at the end..

We had an 80s disco with all the old tracks!

Old photos came out and they even tried to recreate them.

Some of the blokes had a lot less hair, like me, and some had suspiciously too much hair like Steve, but I checked and it wasn’t a wig.

I was surprised how much energy I had that weekend.

P.S. The bed has just arrived! It has been tested by the neighbours and boys. I’ll be crafting the blog entry very soon…